This guide was created by patients, caregivers, and leaders within the IACC community for use by IACC patients and caregivers. Throughout the last year, we have investigated and compiled resources from the community to develop this guide as a first step toward providing the needed foundation and resources for patients, caregivers, and various other stakeholders to begin to uplift, recognize, and take action to address and respond to the challenges people with lACCs are faced with, improving the lives of tens of millions in the U.S.
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